The Autism Parent’s Social Diary Poem

female robotHere we go, off to CAMHS again
Fighting the LA is such a pain

Another meeting with the school
Where they will treat me like a fool

Need to call Parent Partnership yet again
Must go to the GP with kiddo’s belly pain

Drat, is SENDIST really so close
Now what is that probiotics dose

Need to get a melatonin scrip
Then off to the SENCO I have to nip

The EHCP needs amending
And the LA is ever unbending

Oh yes, the appointment with the EP
Trouble is, I have no time free

In-between dealing with meltdowns galore
There are no ‘not-too-tight’ socks in the drawer

Where are the ear defenders I bought
And the scissors to reduce labels to nought

Surely today, will be calm after school
If not, it really won’t be cool

You’re joking, already the EHCP review
But we have the OT, so what shall we do

I remember reading when I had the time
I remember enjoying a glass of wine

I vaguely remember what it meant to go out
But now all the days in my diary are crossed out

Full of endless battles and meetings galore
There is no time for anything else any more

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Autism Truth ~ a poem

Image  It’s a place of confusion, this world around
Not “getting” others, commonly found
Feeling misunderstood and not knowing why
Not seeing others eye-to-eye

Like an alien being, lost in their midst
Feeling communication stutter and twist
Telling the truth, such hostility abounds
They want lies and cover-ups to do the rounds

How strangely they judge from a mistaken stance
No capacity for any face value acceptance
You can’t be for real, or are mentally defective
Because they cannot see, your honest perspective

These games they play, like tricks and deceit
Is par for their course, is no big feat
What is it you want, or what can they get
Can’t they see, this is so wrong yet

In my mind I have a different place
I can retreat to when, I can’t take the pace
It’s a spiritual plane, evolved and knowing
Whilst all around this mad world is blowing

There is wrongness out there in all its forms
I will never, to their ways conform
There’s a purpose to this, a meaning to come
One day all the wrongness will be undone

A poem I wrote once about being on the spectrum…and early diagnosis

NAS poster(poster I designed, displayed at NAS Autism & Participation Conference 28th January 2014)

Autism from the inside view

When you see life through your own set of glasses
When your soul exists worlds apart
Your senses too keen, fragile and shattered
Confusion, is merely the start

***

The world assaults you from all sides
Why are others not also the same
Why are you different, why do you not fit
Why is it you, that others blame

***

You feel like a snail needing it’s shell
You feel like everything’s wrong
People don’t make sense to you
So you sing the saddest song

***

Your anger may rise, your fear overwhelm
Your tears fall unrecognised
Where is the world that for you would be home
Where is that place, that yourself would be prized

***

Hiding away becomes easy, when understanding is none
Encounters with others a trial
Your words feel like those from a foreign shore
And you feel from others such bile

***

You want order and control in this world of chaos
You want others to accept and be aware
But we are the minority in this place
And the majority don’t seem to care

OK, it speaks of the more negative outlook I know, it’s not all doom and gloom, but this is the reality for many people on the spectrum, and this is why it’s so important that early identification and diagnosis is provided for people, because as the following link shows, outcomes for adults who receive late diagnoses are poor: http://www.iancommunity.org/cs/articles/very_late_diagnosis_of_asperger_syndrome and http://www.shu.ac.uk/faculties/ds/education/theautismcentre/docs/ASPECT%20Consultancy%20report.pdf.